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SWAN UK (syndromes without a name) is the only dedicated support network in the UK for families of children and young adults with undiagnosed genetic conditions. We are run by the charity Genetic Alliance UK. Joining is free for any family in the UK with a child (0-25) affected by an undiagnosed genetic condition.
As a member of SWAN UK you can:
If you answer yes to any of the questions below then SWAN UK is here to support your family: