Genetic Conditions

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Genetic Conditions

CHARGE Family Support Group SEND Logo

The group is run by individuals with CHARGE, parents and grandparents as well as professionals with a particular interest in the condition. We work on an entirely voluntary basis and ...

59 Elmer Road , London , SE6 2HA

07950 233100

Crohn's and Colitis UK SEND Logo

Crohn's Disease and Ulcerative Colitis are the two main forms of Inflammatory Bowel Disease. We are the UK's leading charity for Crohn's and Colitis and we have over 50 pages of information to help inform anyone affected, including friends, family, ...

1 Bishop's Square , Hatfield , AL10 9NE

0300 222 5700

Huntingtons Disease Association SEND Logo

We are here to help people living with Huntington's disease to live a better life. We improve care and support services for people with Huntington's disease, educate families and professionals, ...

Suite 24 Liverpool Science Park , 131 Mount Pleasant , Liverpool , Merseyside , L3 5TF

0151 331 5444

Look

We are Look, and we're on a mission to support young visually impaired people and their families to thrive. We do this through mentoring, transformational events, youth forums and parent ...

Fred Bulmer Centre , Wall Street , Hereford , HR4 9HP

07464 351958 or Whatsapp: +44 7464 351 958

Lupus UK

Lupus UK is the only national registered charity supporting people with systemic lupus and discoid lupus and assisting those approaching diagnosis. We presently have over 5500 Members and a number ...

St James House , Eastern Road , Romford , Essex , RM1 3NH

01708 731251

Lymphoma Action SEND Logo

Our team is specially trained to offer you a listening ear and the information you need about your lymphoma. Our friendly support groups are held regularly around the country so ...

Lymphoma Action , 3 Cromwell Court , New Street , Aylesbury , Buckinghamshire , HP20 2PB

0808 808 5555

Prader Willi Syndrome Association UK SEND Logo

PWSA UK is a Charitable Incorporated Organisation and the only charity in the UK working with those living with PWS, their families and carers, together with the myriad of professionals ...

01332 365676

Swan UK (Syndromes Without a Name) SEND Logo

SWAN UK is the only dedicated support network in the UK for families affected by a syndrome without a name - a genetic condition so rare it often remains undiagnosed. ...

Level 3 Barclay House, 37 , Queen Square , London , WC1N 3BH

0300 124 0441

The Arthrogryposis Group SEND Logo

The Arthrogryposis Group are a national UK charity for people affected by Arthrogryposis Multiplex Congenita (AMC), a term used to describe over 300 conditions that cause multiple curved joints in ...

37 Brynteg Avenue , Pontllanfraith , Blackwood , Gwent , NP12 2BY

07508 679351

The Fragile X Society SEND Logo

Fragile X Syndrome is the most common known inherited cause of learning disabilities, affecting around 1 in 4000 males and 1 in 8000 females. It can cause a wide range ...

The Fragile X Society , Rood End House , 6 Stortford Road , Great Dunmow , Essex , CM6 1DA

01371 875 100

The Osborne Centre Multiple Sclerosis SEND Logo

, The Centre is a place to meet for people with MS, their carers, volunteer helpers and supporters. Transport is arranged for the less able from and back to the ...

The Osborne Centre , Church Lane , West Parley , Bournemouth , Dorset , BH22 8TS

01202 570300

Unique

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can ...

The Stables , Station Road West , Oxted , RH8 9EE

01883 723356

BCP Council

SEND Local Offer

Genetic Conditions