Support for children aged 0-25 with Special Educational Needs and Disabilities
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Genetic Conditions

The group is run by individuals with CHARGE, parents and grandparents as well as professionals with a particular interest in the condition. We work on an entirely voluntary basis and ...

59 Elmer Road , London , SE6 2HA

CHARGE Family Support Group Logo Image

07950 233100

Crohn's Disease and Ulcerative Colitis are the two main forms of Inflammatory Bowel Disease. We are the UK's leading charity for Crohn's and Colitis and we have over 50 pages of information to help inform anyone affected, including friends, family, ...

1 Bishop's Square , Hatfield , AL10 9NE

Crohn's and Colitis UK Logo Image

0300 2225700

We are here to help people living with Huntington's disease to live a better life. We improve care and support services for people with Huntington's disease, educate families and professionals, ...

Suite 24 Liverpool Science Park , 131 Mount Pleasant , Liverpool , Merseyside , L3 5TF

Huntingtons Disease Association Logo Image

0151 3315444

4 Look SEND Logo
We are Look, and we're on a mission to support young visually impaired people and their families to thrive. We do this through mentoring, transformational events, youth forums and parent ...

Fred Bulmer Centre , Wall Street , Hereford , HR4 9HP

Look Logo Image

07464 351958

Lupus UK is the only national registered charity supporting people with systemic lupus and discoid lupus and assisting those approaching diagnosis. We presently have over 5500 Members and a number ...

St James House , Eastern Road , Romford , Essex , RM1 3NH

Lupus UK Logo Image

01708 731251

Our team is specially trained to offer you a listening ear and the information you need about your lymphoma. Our friendly support groups are held regularly around the country so ...

Lymphoma Action , 3 Cromwell Court , New Street , Aylesbury , Buckinghamshire , HP20 2PB

Lymphoma Action Logo Image

0808 8085555

PWSA UK is a Charitable Incorporated Organisation and the only charity in the UK working with those living with PWS, their families and carers, together with the myriad of professionals ...

PWSA UK Suite 4.4 , Litchurch Plaza , Litchurch Lane , Derby , Derbyshire , DE24 8AA

Prader Willi Syndrome Association UK Logo Image

01332 365676

SWAN UK (syndromes without a name) is the only dedicated support network in the UK for families of children and young adults with undiagnosed genetic conditions. We are run by ...

Level 3 Barclay House, 37 , Queen Square , London , WC1N 3BH

SWAN UK (Syndromes Without a Name) Logo Image

0300 1240441

Arthrogryposis multiplex congenita (AMC), or simply arthrogryposis, describes congenital joint contracture in two or more areas of the body. ...

37 Brynteg Avenue , Pontllanfraith , Blackwood , Gwent , NP12 2BY

The Arthrogryposis Group Logo Image

07508 679351

Fragile X Syndrome is the most common known inherited cause of learning disabilities, affecting around 1 in 4000 males and 1 in 8000 females. It can cause a wide range ...

The Fragile X Society , Rood End House , 6 Stortford Road , Great Dunmow , Essex , CM6 1DA

The Fragile X Society Logo Image

01371 875100

, The Centre is a place to meet for people with MS, their carers, volunteer helpers and supporters. Transport is arranged for the less able from and back to the ...

The Osborne Centre , Church Lane , West Parley , Bournemouth , Dorset , BH22 8TS

01202 570300

12 Unique SEND Logo
Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can ...

The Stables , Station Road West , Oxted , RH8 9EE

Unique Logo Image

01883 723356