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Support Groups and Charities

1 The Arthrogryposis Group SEND Logo

Arthrogryposis multiplex congenita (AMC), or simply arthrogryposis, describes congenital joint contracture in two or more areas of the body. ...

37 Brynteg Avenue , Pontllanfraith , Blackwood , Gwent , NP12 2BY

07508 679351

2 The Challenging Behaviour Foundation SEND Logo

The Challenging Behaviour Foundation We are the charity for people with severe learning disabilities whose behaviour challenges. We're making a difference to the lives of children and adults across the ...

c/o The Old Courthouse , New Road Avenue , Chatham , Kent , ME4 6BE

0300 6660126

3 The Childhood Eye Cancer Trust SEND Logo

The Childhood Eye Cancer Trust (CHECT) is a UK charity dedicated to helping people affected by retinoblastoma, a rare form of eye cancer. We: , provide support and information ...

The Royal London Hospital , Whitechapel Road , London , E1 1FR

0207 377 5578

4 The Children's Trust SEND Logo

We are the UK's leading charity for children with brain injury. Our national specialist centre is in Tadworth, Surrey, where we provide rehabilitation to children with acquired brain injury and ...

, Tadworth Court , Tadworth , Surrey , KT20 5RU

01737 365080

5 The Duchenne Family Support Group SEND Logo

The Duchenne Family Support Group (DFSG) exists to provide support for families with children diagnosed as having Duchenne Muscular Dystrophy (DMD). The DFSG is a national charity run by families ...

78 York Street , London , W1H 1DP

0800 1214518

6 The Fragile X Society SEND Logo

Fragile X Syndrome is the most common known inherited cause of learning disabilities, affecting around 1 in 4000 males and 1 in 8000 females. It can cause a wide range ...

The Fragile X Society , Rood End House , 6 Stortford Road , Great Dunmow , Essex , CM6 1DA

01371 875100

7 The Haemophilia Society SEND Logo

The Haemophilia Society is the only UK wide charity for everyone affected by bleeding disorders. We help people with bleeding disorders to lead fulfilling lives, make informed choices and to ...

140-148 Borough High Street , London , SE1 1LB

02079 390780

8 The MPS Society SEND Logo

The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by MPS and related diseases throughout the UK. ...

MPS House , White Lion Road , Amersham , Buckinghamshire , HP7 9LP

0345 3899901

9 The Osborne Centre Multiple Sclerosis SEND Logo

, The Centre is a place to meet for people with MS, their carers, volunteer helpers and supporters. Transport is arranged for the less able from and back to the ...

The Osborne Centre , Church Lane , West Parley , Bournemouth , Dorset , BH22 8TS

01202 570300

10 The Restricted Growth Association SEND Logo

We are passionate about changing society for the better, so that people with dwarfism can have the same opportunities as everyone else. Our purpose is to ensure that all people ...

The Restricted Growth Association (RGA UK) , PO Box 88 , Presteigne , LD1 9BL

11 TOFS SEND Logo

TOFS (Tracheo-Oesophageal Fistula Support) is a charity dedicated to improving the lives of all who were born with the TOF condition. For nearly forty years we have been helping families ...

St George's Centre , 91 Victoria Road , Netherfield , NG4 2NN

0115 9613092

12 Tourettes Action SEND Logo

Tourette Syndrome is an inherited, neurological condition, the key features of which are tics, involuntary and uncontrollable sounds and movements. TS is a complex condition and a large amount of ...

The Meads Business Centre, 19 , Kingsmead , Farnborough , Hampshire , GU14 7SR

0300 7778427

13 Unique SEND Logo

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can ...

The Stables , Station Road West , Oxted , RH8 9EE

01883 723356

14 Ups and Downs Southwest SEND Logo

You may have a child or have just had a baby with Down Syndrome and just feel out of your depth. That is exactly why we are here. We are ...

The Old School House , School Road , Westonzoyland , Somerset , TA7 0LN

01278 691100

15 Young Epilepsy SEND Logo

We enable children and young people with epilepsy and associated conditions to develop their full potential through:, Removing stigma and discrimination, Being at the forefront of research into epilepsy, Providing expert ...

Young Epilepsy , St Piers Lane , Lingfield , Surrey , RH7 6PW

01342 832243

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Support Groups and Charities