Support for children aged 0-25 with Special Educational Needs and Disabilities
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Support Groups and Charities

The Klinefelter's Syndrome Association (KSA) offers support and information to all affected by, or having an interest in, Klinefelter's Syndrome (KS) and XXY. The aims of the KSA are: to ...

Klinefelters Syndrome Association , 56 Little Yeldham Road , Little Yeldham , Halstead , CO9 4QT

Klinefelters Syndrome Association Logo Image

0300 111 4748

Families who live with a child who has heart defects or a feeding difficulty have a stressful and difficult task ahead.Respite and support of any kind is invaluable. Lagan's Foundation, ...

Lagan's Foundation Logo Image

01204 800300

3 Look SEND Logo
We are Look, and we're on a mission to support young visually impaired people and their families to thrive. We do this through mentoring, transformational events, youth forums and parent ...

Fred Bulmer Centre , Wall Street , Hereford , HR4 9HP

Look Logo Image

07464 351958 or Whatsapp: +44 7464 351 958

Lupus UK is the only national registered charity supporting people with systemic lupus and discoid lupus and assisting those approaching diagnosis. We presently have over 5500 Members and a number ...

St James House , Eastern Road , Romford , Essex , RM1 3NH

Lupus UK Logo Image

01708 731251

Our team is specially trained to offer you a listening ear and the information you need about your lymphoma. Our friendly support groups are held regularly around the country so ...

Lymphoma Action , 3 Cromwell Court , New Street , Aylesbury , Buckinghamshire , HP20 2PB

Lymphoma Action Logo Image

0808 808 5555

Being able to communicate is one of the most important skills we need in life. Almost everything we do involves communication everyday tasks such as learning at school, asking for ...

The Makaton Charity , Westmead House , Farnborough , Hampshire , GU14 7LP

Makaton Logo Image

01276 606760

The ME Association supports people with ME/CFS through all stages of their illness ME/CFS is hard to accept. And those who do not accept their illness rarely recover. So we ...

7 Apollo Office Court , Radclive Road , Gawcott , Buckinghamshire , MK18 4DF

ME Association Logo Image

0808 801 0484 (Helpline)

The East Dorset and New Forest Branch is run entirely by volunteers and aims to provide the best possible support to local people with MND, their families, and carers. Formed ...

CVS Beech House , 28 - 30 Wimborne Road , Poole , Dorset , BH15 2BU

Motor Neurone Disease Association - East Dorset and New Forest Branch Logo Image

Helpline 0808 802 6262

We are the MS Society - a community of people living with MS, scientists, campaigners, volunteers and fundraisers. We understand what life's like with MS, and we support each other ...

MS National Centre , 372 Edgware Road , London , NW2 6ND

Multiple Sclerosis Society Logo Image

0808 800 8000

We are the UK charity for individuals and families living with muscle-wasting conditions., We support research to drive the development of effective treatments and cures., We ensure access to specialist ...

61a Great Suffolk Street , London , SE1 0BU

Muscular Dystrophy UK Logo Image

0800 652 6352 (Helpline)

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools. One estimate suggests that up to 1 in ...

Having Parkinson's can feel overwhelming if you don't have the right information and support. We're here to make sure that no one has to face Parkinson's alone. The groups welcome ...

Parkinson's UK Logo Image

0808 800 0303 (Helpline)

Perthes Kids Foundation is a voluntary organisation that supports children who suffer from Perthes disease and Associated conditions. For many years we have supplied equipment for children in plaster but ...

PO Box 773 , Guildford , GU1 1XN

Perthes Kids Foundation Logo Image

The Diabetes Centre at Poole Hospital provides holistic care for anyone with diabetes, and we have established ourselves as a Centre of Excellence. We have many different types of clinics ...

, Longfleet Road , Poole , Dorset , BH15 2JB

Poole Hospital Diabetes Centre Logo Image

0300 019 3096

PWSA UK is a Charitable Incorporated Organisation and the only charity in the UK working with those living with PWS, their families and carers, together with the myriad of professionals ...

Prader Willi Syndrome Association UK Logo Image

01332 365676

16 Scope SEND Logo
Scope exists to make this country a place where disabled people have the same opportunities as everyone else. Until then, we'll be here. We provide support, information and advice to ...

Here East Press Centre , 14 East Bay Lane , London , E15 2GW

Scope Logo Image

0808 800 3333

17 Sense SEND Logo
Sense is a national charity that supports and campaigns for children and adults who are deafblind. Deafblindness refers to a combination of sight and hearing impairment which causes difficulties in ...

101 , Pentonville Road , London , N1 9LG

Sense Logo Image

18 Shine SEND Logo
Shine provides specialist advice and support for spina bifida and hydrocephalus across England, Wales and Northern Ireland. If you: , Have spina bifida or hydrocephalus , Are pregnant and ...

Unit 4 The Forum , Minerva Business Park , Peterborough , PE2 6FT

Shine Logo Image

01733 555988

Spinal Injuries Association (SIA) is the leading national user-led spinal cord injuries charity. We are governed by a trustee board made up of a diverse group of spinal cord injured ...

SIA House , 2 Trueman Place , Oldbrook , Milton Keynes , Bedfordshire , MK6 2HH

Sia - Spinal Injuries Association Logo Image

0800 9800501

The Sickle Cell Society believes that individuals with sickle cell disease have the right to quality care. This can only be achieved if funding is made available to educate health ...

Sickle Cell Society , 54 Station Road , London , NW10 4UA

Sickle Cell Society Logo Image

020 8961 7795

The Stroke Association offers a Childhood Stroke Support Service - providing information, advice, support and networking events to families affected by stroke in childhood. The service is UK wide and ...

Stroke Association Childhood Stroke Support Service Logo Image

0303 3033 100 for Helpline

SWAN UK (syndromes without a name) is the only dedicated support network in the UK for families of children and young adults with undiagnosed genetic conditions. We are run by ...

Level 3 Barclay House, 37 , Queen Square , London , WC1N 3BH

SWAN UK (Syndromes Without a Name) Logo Image

0300 1240441

Arthrogryposis multiplex congenita (AMC), or simply arthrogryposis, describes congenital joint contracture in two or more areas of the body. ...

37 Brynteg Avenue , Pontllanfraith , Blackwood , Gwent , NP12 2BY

The Arthrogryposis Group Logo Image

07508 679351

10 children and teenagers are diagnosed with a brain tumour every week in the UK, that's more than one a day. The Brain Tumour Charity is raising national awareness of ...

The Brain Tumour Charity Logo Image

0808 800 0004

The Challenging Behaviour Foundation We are the charity for people with severe learning disabilities whose behaviour challenges. We're making a difference to the lives of children and adults across the ...

c/o The Old Courthouse , New Road Avenue , Chatham , Kent , ME4 6BE

The Challenging Behaviour Foundation Logo Image

0300 6660126